Glioblastoma

Rich Clinical RWD on over 19k historic glioblastoma patients

Summary

19,711

Patients diagnosed

5.2M

Clinical notes

62K

Lab results

Mayo Clinic Platform offers access to high-quality, comprehensive, longitudinal clinical data that few in the industry can provide. This includes access to structured data, such as demographics, diagnoses, lab test results, and medications, as well as unstructured data, including imaging, pathology reports, clinical notes, and radiology reports.

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Data details

Radiology

Number of patients with radiology procedures performed around glioblastoma diagnosis

This graph highlights the number of patients — out of the defined cohort of 19,711 Glioblastoma patients — that have had a radiology procedure performed and have radiology and clinical reports available.

Year before

MRI
1K
2K
3K
4K
5K
6K
7K
8K
9K
CT
1K
2K
3K
4K
5K
6K
7K
8K
9K
Ultrasound
1K
2K
3K
4K
5K
6K
7K
8K
9K
Digital radiology
1K
2K
3K
4K
5K
6K
7K
8K
9K

Year after

MRI
1K
2K
3K
4K
5K
6K
7K
8K
9K
CT
1K
2K
3K
4K
5K
6K
7K
8K
9K
Ultrasound
1K
2K
3K
4K
5K
6K
7K
8K
9K
Digital radiology
1K
2K
3K
4K
5K
6K
7K
8K
9K

1 year before and after

MRI
1K
2K
3K
4K
5K
6K
7K
8K
9K
CT
1K
2K
3K
4K
5K
6K
7K
8K
9K
Ultrasound
1K
2K
3K
4K
5K
6K
7K
8K
9K
Digital radiology
1K
2K
3K
4K
5K
6K
7K
8K
9K

Year after

MRI
1K
2K
3K
4K
5K
6K
7K
8K
9K
CT
1K
2K
3K
4K
5K
6K
7K
8K
9K
Ultrasound
1K
2K
3K
4K
5K
6K
7K
8K
9K
Digital radiology
1K
2K
3K
4K
5K
6K
7K
8K
9K

Labs

Description

Patients 19,711

MRI of the brain
74.4%
14,667
Immunohistochemistry
40.6%
8,001
Craniotomy
27.3%
5,390
C-reactive protein (CRP)
17.4%
3,436

Description

Patients 19,711

Hemoglobin
77.6%
15,303
Leukocytes
76.7%
15,113
Platelets
76.7%
15,118
Carcinoembryonic antigen (CEA)
2.7%
532

Patient record types

19,711

Patients diagnosed

5.2M

Clinical notes for all patients

264

Avg. clinical notes / patient

328

Genomics data available

290

Patients with biobank specimens

16,707

Patients with histopath specimens

5,653

Patients with histo images

97.36%

Patients with procedure records

96.41%

Patients with medication/order records

92.85%

Patients with lab tests

15.28%

Patients with treatment plan records

Clinical notes

Most Common

Number

Progress Notes
431,002
Outpatient Summary - Prelim
92,277
Neurology Miscellaneous
86,373
Plan of Care
79,906
Medical Oncology Miscellaneous
75,565
Medical Oncology Subsequent Visit
71,358
MU I-R-P Care Plan
68,796
Case Summary Report
62,229
Neurosurgery Progress
52,917
Ambulatory Patient Summary
50,681

Most Common

Number

Radiology Oncology Therapy
47,589
MRI HD WO&W
46,525
Neurology Subsequent Visit
46,205
Adult Ambulatory Care Intake/History
46,043
Consults
43,713
Ambulatory Discharge Medication List
41,271
Consults - Outpatient
40,217
Adults Activities of Daily Living
39,579
Adults Ongoing Assessment
39,579

Prevalence of key words in clinical notes

Blurred vision
20%
40%
60%
80%
Chemotherapy
20%
40%
60%
80%
Edema
20%
40%
60%
80%
Fatigue
20%
40%
60%
80%
Headaches
20%
40%
60%
80%
Nausea
20%
40%
60%
80%
Radiation
20%
40%
60%
80%
Seizures
20%
40%
60%
80%
Tumor
20%
40%
60%
80%
Weakness
20%
40%
60%
80%

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Longitudinal data

Longitudinal history and care ‘density’ across cohort of 19,711 patients

Patient record data

Avg pre-dx
Avg post-dx
6 yrs
9.9 yrs
Avg duration at Mayo Clinic
15.9 yrs

Events data

Pre
Post-dx
10 days
60 days
Med days with clinical encounter or data
92 days

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